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Disabilities
in General |
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AUCD,
the Association of University Centers on Disabilities, is
a nonprofit organization that promotes and supports the national
network of university centers on disabilities, which includes
University Centers for Excellence in Developmental Disabilities
Education, Research, and Service (UCEDD), Leadership Education
in Neurodevelopmental and Related Disabilities (LEND) Programs
and Developmental Disabilities Research Centers (DDRC). |
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Developmental
Disabilities, Including Mental Retardation |
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The
Arc of The United States is the national organization
of and for people with mental retardation and related developmental
disabilities and their families. They have chapters all around
the country.
The
AAMR promotes
progressive policies, sound research, effective practices,
and universal human rights for people with intellectual disabilities.
www.mycitymyplace.com,
detailed resource directory for people with mental retardation,
families, and professionals. Based in the Philadelphia region.
Chromosome
Deletion Outreach, Inc. (CDO), a nonprofit organization
providing support and information to families affected by
rare chromosome disorders. |
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Siblings
of People with Special Needs |
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Rachel
Simon, Author of Riding The Bus With My Sister
The
Sibling Support Project. Run by the very energetic and
caring Don Meyer, the Sibling Support Project is a national
program dedicated to the interests of brothers and sisters
of people with special health and developmental needs. They
provide support for sibs of all ages, including the listservs
SibNet, for adult sibs, and SibKids, for younger sibs. They
also link you to Don Meyer’s books about sibs, including Living
With A Brother Or Sister With Special Needs and Views
From Our Shoes. SibNet has been a very supportive online
community for me.
www.wch.sa.gov.au/sibling.
Services for siblings of children with special needs. Based
in Australia, though very helpful for sibs anywhere. You can
also learn more about the book by Kate Strohm, Siblings:
Brothers and Sisters of Children with Special Needs.
There
are also some wonderful books about the sibling experience,
including Special Siblings by Mary McHugh, available
at www.brookespublishing.com;
The
Ride Together, by Judy and Paul Karasik; and books
by Don Meyer (see the Sibling Support Project, above).
The
Sibling Support Network in Japan. This is a Web site put
up by Yasuko Arima which also includes good links to sites
in the U.S.
The
Kent Jacobs Foundation. The Kent Jacobs Foundation, run
by Kent’s sister, is dedicated to raising public awareness
of the phenomenon of missing persons who have developmental
disabilities, a category overlooked by the agencies that deal
with missing children and missing adults. Kent Jacobs, who
disappeared in North Caroline on March 10, 2002, is still
missing.
Wakefield
Press. The siblings of children with special needs are
often the forgotten ones in families struggling to cope with
the demands of having a child with a disability or chronic
illness. Kate Strohm's book Siblings finally gives
these sisters and brothers a voice. Kate, who has a sister
with cerebral palsy, bravely shares her own story, and the
stories of other siblings who struggle with their feelings
of resentment, guilt, grief and isolation. She also explores
how these difficulties can manifest in adulthood as depression,
anxiety and other psychological problems, and gives detailed
strategies for coping and coming to terms with these feelings.
Sibs.
This website is a friendly, comprehensive site that serves
siblings of all ages in the UK. |
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